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E80.21

Billable

Acute intermittent (hepatic) porphyria

HCC Category Mapping

V28HCC 50Glycogen/Amino-Acid/Other Metabolic Disorders
0.289
V24HCC 23Other Significant Endocrine and Metabolic Disorders
0.230
ESRDHCC 23Other Significant Endocrine and Metabolic Disorders
0.000
RxHCCHCC 43Other Significant Endocrine and Metabolic Disorders
0.000

What This Code Means

A severe inherited porphyria causing sudden attacks of severe abdominal pain, neurological symptoms, and psychiatric manifestations.

Coding Tips

  • Document acute attack episodes separately from the chronic condition
  • Code associated neurological or psychiatric complications that occur during attacks

Clinical Significance

Acute intermittent porphyria (AIP) is the most common acute hepatic porphyria, caused by deficiency of porphobilinogen deaminase (HMBS). It presents with neurovisceral crises including severe abdominal pain, neuropsychiatric symptoms, autonomic dysfunction, and potentially life-threatening hyponatremia, typically triggered by drugs, hormones, fasting, or stress.

Documentation Requirements

  • Provider diagnosis of acute intermittent porphyria
  • Elevated urine porphobilinogen (PBG) and aminolevulinic acid (ALA) during acute attacks
  • HMBS/PBGD enzyme activity or HMBS gene mutation testing
  • Attack history: frequency, triggers (medications, hormones, fasting), severity
  • List of safe vs. unsafe medications maintained in the record
  • Acute management: IV hemin (Panhematin), glucose loading, pain management
  • Current preventive measures (GnRH agonist for menstrual-triggered attacks)

Commonly Confused Codes

Code Hierarchy

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