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E79.81

Billable

Aicardi-Goutières syndrome

HCC Category Mapping

V24HCC 23Other Significant Endocrine and Metabolic Disorders
0.230
ESRDHCC 23Other Significant Endocrine and Metabolic Disorders
0.000
RxHCCHCC 43Other Significant Endocrine and Metabolic Disorders
0.000

What This Code Means

A rare inherited autoimmune-like condition affecting the nervous system, causing progressive brain and nerve damage.

Coding Tips

  • This is a complex genetic disorder; ensure complete documentation of all manifestations
  • Code associated neurological symptoms separately as they develop

Clinical Significance

Aicardi-Goutieres syndrome is a severe genetic autoinflammatory disorder that mimics congenital viral infection, causing progressive encephalopathy, intracranial calcifications, white matter disease, and elevated interferon-alpha in cerebrospinal fluid. It is an interferonopathy that causes significant disability and requires complex multidisciplinary care.

Documentation Requirements

  • Provider diagnosis of Aicardi-Goutieres syndrome
  • Genetic testing confirming mutation in one of the associated genes (TREX1, RNASEH2A, RNASEH2B, RNASEH2C, SAMHD1, ADAR1, IFIH1)
  • Neuroimaging findings: intracranial calcifications, white matter abnormalities, cerebral atrophy
  • Cerebrospinal fluid analysis: elevated interferon-alpha, lymphocytosis
  • Current neurological status: encephalopathy severity, seizures, motor function
  • Chilblain-like skin lesions if present

Commonly Confused Codes

Code Hierarchy

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