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G11.6

Billable

Leukodystrophy with vanishing white matter disease

HCC Category Mapping

V28HCC 200Cerebellar Ataxia and Other Degenerative Diseases of Nervous System
0.262
V24HCC 72Spinal Cord Disorders/Injuries
0.464
ESRDHCC 72Spinal Cord Disorders/Injuries
0.000

What This Code Means

Leukodystrophy with vanishing white matter disease is a rare genetic disorder where the protective coating of nerve fibers in the brain progressively deteriorates, causing neurological decline.

Coding Tips

  • Document the age of onset and progression pattern to support the diagnosis
  • Code any associated symptoms (e.g., seizures, cognitive decline, ataxia) separately if clinically relevant

Clinical Significance

Leukodystrophy with vanishing white matter disease is a progressive genetic disorder where white matter in the brain deteriorates, especially during febrile illness or minor head trauma. This condition leads to progressive neurological decline and is often fatal, requiring intensive neurological management and family support services.

Documentation Requirements

  • Brain MRI demonstrating vanishing white matter pattern (rarefaction of cerebral white matter)
  • Genetic testing results for EIF2B gene mutations if available
  • Documentation of episodic deterioration triggered by fever or trauma
  • Progressive neurological decline documented with timeline
  • Age of onset and rate of progression
  • Current functional status and supportive care needs

Commonly Confused Codes

Code Hierarchy

G11Hereditary ataxiaG11.6Leukodystrophy with vanishing white matter disease
G11.6Leukodystrophy with vanishing white matter disease

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